Rethinking Guardianship

Guardianship is not one size fits all. It's important to consider your relationship with your child and other surrounding factors. Don't let someone tell you what to do. You have the ability to decide what's right for you and your child. Watch video


Elijah is 27 years old and has been on the Innovations Waitlist for 12 years. He is very social, has anexcellent memory and loves basketball. His family applied to Cardinal MCO for an Emergency CapacitySlot for the Innovations Waiver in November 2020. Their request was denied. Please enjoy this video message from Elijah.

North Carolina failed Ruby: 15,000 others still wait

Woman’s death highlights Innovations Waiver waitlist crisis Reposted from: by Jill Sirko Ruby Loftin (Courtesy Photo: Disability Rights NC)A short video of Ruby and her mother, Carrie. Continue reading


I am a parent of a 5 year old son who is non verbal autistic.  Our son, Austin has been on the waitlist for the Innovations Waiver for 18 months and have been told he will probably be waiting another 10 years.  We live in Rockingham County. During the Covid pandemic his school program is ALL virtual... my heart is absolutely broken.  Austin will miss therapies because he refuses to do virtual and our health insurance charges $100 for 30 mins a week for speech and naturally we can’t afford that. Continue reading

Veronica and Madison share their video story

Veronica and Madison share their video story of waiting for the Innovations Waiver in North Carolina. Continue reading


Our son, Garrett West, Autistic, (22) has been on the Registry of Unmet needs since April 2008. Continue reading


We were fortunate to receive the Innovations Waiver when Holden was 3 years old. At the time, we lived in Yadkinville, NC. This program has been so helpful in many ways for our family and especially for Holden.  Continue reading


I live in Catawba County. My son is not on the list for the Innovations Waiver. I need to do it. Not sure how to get started. Continue reading


Madison will be exiting the public school system in June of 2020. She has been on the Innovations Waiver wait list for 5 1/2 years. I plan to enroll Madison in a day program but I will have to pay out of pocket since she does not have the Waiver. One of the programs I am looking at costs $84 per day.  Continue reading


We moved to NC in August 2016. We moved to Chapel Hill because my husband started a job as an assistant professor at UNC.  We lived before north of Boston and had a waiver through MA that we got immediately after we moved.  Continue reading