New Year Registry Resolutions 2021

Dear Friends, Colleagues, and “Too Long to Wait” Advocates – January is here and most of us are hard wired to think anew about the future; possibly even a positive spin on health and politics.  As I write, the legislature is preparing to convene, newcomers are pondering committee assignments, and no doubt, deals are being designed around available resources, dreams, and schemes.  Cynics imagine the worst, optimists search for silver linings.  We at the ncwaiveractionteam.com are simply preparing to do the work necessary to move our ideas, agenda, and mostly our stories, forward.  We are in discussions with the Arc of NC, the NC Center for Developmental Disabilities, and several other organizations who work with and monitor the legislature as well as recommend to state agencies.  There is always work to be done and we are – in spite of the virus – trying to connect in every way possible with you and our fellow advocates. Continue reading

Summer Call to Action

First, we celebrate those heroes and agencies who remain able, working from home and working from their hearts, to sustain their commitment to our disability communities and their care providers.   Our work as an action team is ahead of us.  The “TOO LONG TO WAIT” march to Raleigh has just taken on a new dimension.  As the state reserves evaporate addressing virus challenges, we know our wait will be longer and our work and lives will be harder.  This fall’s election and next Spring-Summer-Fall’s North Carolina legislative session will be critical if we want our long term message on the minds of those we elect. To that end, we are calling on each of you to engage this election as if your life and loved ones depend on it.  (It does!) Find the NC legislator whom you can embrace – in the long term – who will support the need for waiver discussion and action.  Support them in a way they will remember you.  Our work must continue. To help with telling our stories – wrapped in the blanket of medical and economic Covid-19 realities - we are calling on you to add to our family stories.  We want them to dot the state throughout 2021 as reminders that “Too Long To Wait”, has gotten longer! CALL TO ACTION:  (First – VOTE!  We encourage people to secure absentee ballots, just in case) Send us your written stories and photos to publish.   Let us know if we can help you capture video images to edit and share.   Tell us about your letters and conversations with legislative candidates and ways we can build synergy and track with advocacy groups you respect and support.    Please encourage everyone to register on this website!  ***READ SAMPLE LETTERS HERE*** “In Case You Missed It!” Last month was National Disability Voter Registration Week (July 13-17).  The aapd.com website offers many ways to engage, REV UP as their call to action:  Register, Educate, Vote,   Use (your) Power. Please visit their website as a resource for your own local call to action with targeted sections on social media flyers, op ed writing, and a great toolkit for engagement.  AAPD (American Association of People with Disabilities) are “ Conveners, Connectors, and Catalysts. “

Virus Deepens and Widens Waiver Push

The Coronavirus has added new challenges and responsibilities to our work.  Covid-19 has accentuated the caregiver and the care receiver interface.   We find many of our caregivers are either opting for stay-at-home guidelines or required at home for school age children and other family challenges.  For the provider agencies and families needing services this is a shared employment nightmare.   Continue reading

March 14 2020

Due to the CoronaVirus, some of our outreach events are on hold, but we want to fill you in on recent 2Long2Wait! actions and media coverage.   We hope you are finding ways to cope with the crisis and the challenge it presents your families and organizations.  Virus aside… we have good news to share. 33 counties are now represented in our ncwaiveractionteam.com database. We are 1/3 of the way toward state-wide contact.   The Forsyth County team has had great success getting the word out.     Continue reading

Feb 14 2020

FEBRUARY 14 - Sweet wishes to you and your loved ones! The Forsyth County Central Library has been booked for a Big Rally on March 7, starting at 2 PM. Everyone is invited! Please save the date, event registration opens next week. Continue reading