Madison will be exiting the public school system in June of 2020. She has been on the Innovations Waiver wait list for 5 1/2 years. I plan to enroll Madison in a day program but I will have to pay out of pocket since she does not have the Waiver. One of the programs I am looking at costs $84 per day. 

Also, the day programs I have been looking at end at 2:30 so I am trying to think of creative ways to piece together family, friends and a helper I will pay so I can continue to work. Madison cannot stay home alone. I think Madison would enjoy learning how to play the piano, take swim lessons, do some volunteer work and maybe even get a part time job. If she had the Waiver then a support person could be employed to get her to all of these opportunities and her life would be more well rounded. Instead, I will be using savings to pay for a day program and Madison will be missing out on these possibilities. It is exhausting to think about the years ahead.

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  • Deborah Woolard
    commented 2020-04-17 18:25:05 -0400
    Madison, thank you and your mother for attending our 2Long2Wait Rally in Winston-Salem and sharing the difficulties you both face without the Innovations Waiver.