We moved to NC in August 2016. We moved to Chapel Hill because my husband started a job as an assistant professor at UNC.  We lived before north of Boston and had a waiver through MA that we got immediately after we moved. 

Before that we we lived in Ohio where we waited 2 and half years before we received a waiver. While we waited in Ohio, we received great services through the county. I think making people wait 10 plus years is insane. We have decent insurance through the state of North Carolina, but we could really use even just the Medicaid card to have as a secondary insurance. Our copays are very high and we have crazy expensive fees to take him to the ER when he has a seizure. We don’t have family that lives in state so we have to pay out of pocket for a college student to spend time with Jack so we can have any break. 

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  • Deborah Woolard
    commented 2020-03-12 13:00:16 -0400
    Thank you for telling your story. I’m sure it’s one you hear often from other families. 14,000 waiting is damaging to those waiting and their families. Once our present virus concerns resolve I hope we can help you and others have a rally in Chapel Hill. In the mean time I hope parents like you will send articles to the local newspaper and any family magazines in your area. This has to be a state-wide effort.